Counting the Costs 2018

Mums, dads and other family members who care for children and young people with additional needs or disabilities: this is your chance to take part in important research about family finances and changes to the benefits system.

Your responses to our Counting the Costs 2018 survey will give us a unique snapshot of families' current financial situation and whether it is getting better or worse.

By filling out the survey you will be helping us to raise awareness and campaign for change - particularly as cuts to benefits continue to hit families with disabled children hard.



Counting the Costs is our flagship research that we've carried out every two years since 2008. Last time we found there was a sharp rise in the number of families with disabled children going without heating and food. This was leading to too many disabled children and their families suffering ill health.

As a result of the research our campaign achieved a number of improvements. Access to the Warm Home Discount Scheme was standardise to low income families with disabled children (and those with children under five). The government also announced an increase in the maximum amount of money that parents of disabled children can pay into their childcare scheme accounts.

We need as many of you as possible to complete the survey and help us build that true picture by completing the survey which should not take more than 15-20 minutes. The deadline to complete the survey is 18 May 2018.

Please help get your voice heard by completing our survey

If you would like a hard copy of the survey or help completing the survey, please contact us on 020 7608 8742