All about diagnosis
This section is for parents who are going through the process of trying to get a diagnosis for their child. It contains information on:
Background to diagnosis
Once you realise your child may have a learning difficulty or health problem, getting a diagnosis may take some time.
Genetic Alliance UK estimates that about 50 per cent of children with a learning disability have no definitive diagnosis and there are also some children with a disability that no one is able to explain the cause of.
If your child has an undiagnosed condition you may worry that you might not be able to get any help or support - but this is not the case. Every child is different, and your child is entitled to get support for their individual needs, regardless of whether they have a diagnosis.
For further information on common issues around diagnosis, read our guides written for parents of disabled children.
- About diagnosis: Living without a diagnosis [PDF]
- About diagnosis: Living with a rare condition [PDF]
- About diagnosis: Developmental delay [PDF]