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Our parent guides and factsheets
We produce a series of guides and factsheets on all aspects of raising a disabled child.
Parent Carer Participation: Parent Participation Annual Review 2019 - 2020
PARENT CARER PARTICIPATION 2019 – 2020 TRANSFORMING LIVES The impact of Parent Carer Forums Strategic engagement of forums Reaching seldom-heard groups Contact: supporting Parent Carer Forums to change lives Funding the forums
Annual Health Check FAQs
Frequently asked questions about annual health checks answered by our health lead Amanda Elliot.
Parent Carer Participation: Herts Parent Carer Involvement statement on campaigning
Hertsfordshire (Herts) Parent Carer Involvement statement on campaigning
Parent Carer Participation: Co-production and Campaigning Guidance
Campaign Guidance Co-production and Campaigning: Parent Carer Forums and local and national campaign groups Definitions -The role of Parent Carer Forums in Co-production The role of campaign groups Why might Parent Carer Forums choose not to campaign? How can Parent Carer Forums work with Campaign Groups? Managing relationships
Parent carer participation: Nascot Lawn short case study
Case study of Forums working effectively with campaign groups – Herts Parent Carer Involvement and the Nascot Lawn Campaign The forum in Hertfordshire (Herts Parent Carer Involvement) worked with a parent-led protest group who aimed to save Nascot Lawn, an overnight short breaks facility for children with complex health needs. The forum also worked with strategic partners to improve processes around consultation, evidence gathering and strategic planning while maintaining their role as the collective voice for parents of children with additional needs.
Parent carer participation: Overview of HPCI for professionals
Overview of HPCI (Hearts Parent Carer Involvement) overview. What is it and who are we? Description of what a parent carer forum is.
Parent carer participation: Co-production, campaigning & the independence of Parent Carer Forums Webinar Presentation
A Contact and NNPCF webinar presented by Mrunal Sisodia – Co-Chair, NNPCF and Kate Hurn, Operations Lead, Parent Participation, Contact. With contribution from Carol Kelsey (Co-ordinator at Herts Parent Carer Involvement) about how the forum worked with parent carers and groups around the proposed closure of Nascot Lawn respite centre. The webinar includes: • How parent carer forums can work with campaign groups for better outcomes for families • What parent carer forums can and can’t do to support campaigns • A good practice case study from Herts Parent Carer Involvement about the Nascot Lawn Campaign • Government Guidance • How parent carers who are also forum committee members can be involved in campaigns • Governance of parent carer forums working with campaign groups • Forum guidance around campaigning
Pears Grant guidance
PEARS/DCMS funding via Contact Location: England Only Deadline: 9am 30th November 2020 About the Grant The funding has been made available to: Ensure essential services are provided to vulnerable people, both in the short and long term through increased community support through the work of charitable organisations. Reduce closures of essential charities that provide essential services to vulnerable groups during the COVID-19 crisis by ensuring they have the financial resources to operate, thereby reducing the burden on public services. Respond to the needs of the most vulnerable and marginalised people affected by the COVID-19 crisis.
Parent guide: Money Matters Scotland - A checklist for when your child has additional needs
A checklist of the entitlements to benefits and other financial help you may be able to get if you are the parent of a disabled child in Scotland.
Parent carer participation: NHS / NNPCF admissions avoidance for CYP Webinar Presentation
Webinar presentation to support the webinar recording New NHS / NNPCF admissions avoidance for children and young people – what is the NHS doing and how can pcfs help?